World Wonderful Place

by admin March 4, 2023 0 Comment

By Leah S. Dunaief

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“Born to Sparkle” is a book written, to my surprise, by a adolescent woman with Down syndrome. The blow of the book appellation is “A Adventure About Achieving Your Dreams.” A analysis of the book appears in our Arts and Lifestyles area on folio B23 in this issue, and it tells a heartwarming adventure about the author, Megan Bomgaars, who is 29 and lives in Denver. In the words of our reviewer, Melissa Arnold, the book “teaches kids that all of us are altered and acquire article appropriate to allotment with the world, and if you dream big and assignment hard, you can accomplish anything.”

Why am I surprised? Because my sister, who was two years adolescent than I, additionally was built-in with Down syndrome, and like Megan, on Thanksgiving Day but 50 years beforehand in 1942. While she was able and admirable in abounding ways, Maxine could never acquire accounting a book, in allotment because she would never acquire been absurd to do so. What a aberration that half-century makes.

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There is a ample spectrum of Down diagnoses, and Maxine was arresting “profoundly retarded,” which absolutely bound expectations for her life. While Megan’s adage is, “Don’t Limit Me!”, and she has become a motivational apostle and the buyer of a business, the professionals who advised my sister Maxine told my parents to allocate her “because she won’t alive actual continued anyhow with that condition.” She lived to be 65.

It was my sister’s bad luck to be built-in bristles decades earlier, aback brainy amentia was advised a stigma for a family, and the acknowledgment to such a bearing was to adumbrate the innocent person. Megan Bomgaars, by comparison, aggregate her life’s adventure on television with six others in the A&E docuseries “Born This Way.” The appearance went on to win an Emmy in 2016.

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It was my sister’s acceptable luck to acquire two parents who accustomed her as a absolutely advantaged affiliate of our ancestors and approved to accord her every advantage that existed then, which were actual few. Aback the arch of the elementary academy that I abounding banned to acquire her into aboriginal grade, my mother asked for the “Dick & Jane” alternation with which aboriginal graders were accomplished to apprehend and patiently formed with my sister at home for abounding hours a day. Eventually, Maxine could proudly apprehend that primer. She could additionally do simple arithmetic, abacus and subtracting, and she was actual verbal.

In fact, that was the alone difficult allotment of activity with Maxine. She talked consistently and in a loud voice, as if she were on one ancillary of a blast conversation. Alone two things could accomplish her quiet down: music and baseball.

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Maxine would sit agilely in the aback of the allowance while I took piano acquaint from a abecedary who came to the apartment. After he larboard and I got up, she would accelerate assimilate the piano stool and comedy the melodies of the altered pieces I had gone over with the teacher. We’re talking actuality Bach, Czerny and Mendelsohn. She additionally adored music that she would apprehend on the radio, abnormally appearance tunes that she could sing. And sing she did, in a Jimmy Durante voice. One of her favorites was “Oklahoma!”

Also, she admired to accept to baseball amateur on the radio and watch them played on our Sunday outings with our dad to Central Park. I don’t apperceive if she followed the intricacies of the game, but she knew aback to acclamation and apparently admired actuality allotment of the crowd.

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Megan Bomgaars admired activity to academy and was a cheerleader in aerial school. My sister additionally abounding a academy in Brooklyn that was operated by Catholic Services. A bus would aces her up, forth with my mother, anniversary day and drive them to Brooklyn. Incidentally, my mother never let her out of her sight. My parents adequate Maxine from a apple that could not consistently be affectionate and safe. But for Megan, a actuality who incidentally has Down syndrome, today association learns from her.

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